Preventive Mastectomy: Checking the Survivor Box

Posted October 2, 2017 by Prairie Wife - 6 comments

woman at hospital

It never ceases to amaze me how different everyone’s Preventive Mastectomy Journey truly is. 

I belong to a private group of over 5,000 women on FB, and each woman has a different story to tell. For every question like “Did drain belts help you?”  “Do you have feeling in your breasts still?” There are always dozens of different answers. My hope in sharing my journey was to offer support to other women. I felt that allowing them to read my thoughts and see pictures of my body as it changed over the course of a year of surgeries would help them to make a better decision, to feel less alone, and to prepare themselves for the choices they might have to make.

Women continue to use my blog as a resource, and the comments, emails, and messages keep pouring in. At times they bring me to tears. Knowing that my honesty has helped someone to feel less alone has been huge for me. I also love when women comment with their own different experiences because it only allows me to help more people!

I’m giving you this look into my thoughts because I know that others out there will not agree with what I am going to say below.

I can only hope that they see my choice as simply that…my choice and not a judgment on theirs.

October is Breast Cancer Awareness month. A month that is dedicated to reminding women to do their monthly breast checks, to focus on raising money for Breast Cancer Research, to celebrate Breast Cancer survivors, and honor the memories of all those we have lost to this disease.

This month hits close to home as I have a sister, a mother, and two aunts that have battled Breast Cancer.

This family history led me to choose to have a preventive mastectomy and reconstructive surgery last year.

Our community has a yearly 5K Ta Ta Trot. The first year I ran in it was when I found out my sister had Breast Cancer. Pregnancies and life prevented me from running it again, and then last year, I was still not cleared from my surgery to run. This year I am elated that I can finally get back to running in this race.

checking the boxFor many of these runs, there is a choice to check a box labeled survivor. Often, a special shirt or colored racing bib shows that these participants are survivors.

Many women who have had this surgery (but have not had cancer) struggle with whether they should put a checkmark in this box.

Not me. I have no doubt in my mind about what I should do.

For me, that box stays blank.

women in our familyMy mother, who went through a lumpectomy and weeks of radiation treatment that left her skin burned and her body worn down for months afterward, can check that box.

My sister had a lumpectomy, months of chemo, and radiation and charged forward with her typical “this is what I need to do now so I can get to the rest of my life” attitude…she can check that box.

Was my decision to have a preventive mastectomy hard…hell yes. Was the last year of my life more physically and emotionally painful than I had ever thought it would be…yes.

But, I chose to have a preventive mastectomy specifically, so I would NOT have to be a survivor. So I could reduce my chance of going through what my mom, sister, and aunts did to 2%.

I will run the Ta Ta Trot Saturday, holding thoughts of my family close to my heart. Their strength, bravery, and the gift of more years with them to look forward to.

I will run with a heart full of thanks that in the fight against Breast Cancer, I was able to throw the first punch…hoping that for me…the survivor box will always remain empty.

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6 thoughts on "Preventive Mastectomy: Checking the Survivor Box"

  1. Bennie says:

    You go girl! I love that name – Ta Ta Trot. I once had the idea for a softball game with local celebs (mayor, etc., unless real celebs could be recruited) called Save Second Base but I was never able to get people interested in organizing something. Maybe a cookie bake sale with a cookie with pink frosting in the shape of a softball game base (sort of that house shape the bases re on a field?) as a start?

    I’m glad your blog has helped other ladies with their decisions and as an inspiration.

    1. Prairie Wife says:

      It is a fun name and I LOVE your idea! And I’m glad it’s helped others too 🙂

    2. Pa says:

      “Save Second Base” made me laugh so much I snorted coffee!

      1. Prairie Wife says:

        It’s awesome right?!

  2. Lish says:

    Yay you for making that amazingly strong choice to prevent getting cancer! Totally agree with you though that your mom and sister are survivors abd that preventive surgery does not make you a survivor (but still super strong and inspiring)

    1. Prairie Wife says:

      Thanks for your support!

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